ABOUT US

Alzheimer’s disease represents a major challenge for our societies. Estimating that 1.1 million people are expected to suffer from cognitive impairment by 2040, the WHO has identified Alzheimer’s disease as the most serious health problem of the 21st century. In order to significantly advance the Alzheimer’s cause and meet this public health challenge that has become a priority, the strategy that the Alzheimer Community Support of Burundi (ACSB) has been implementing for nearly 10 years is based on the following convictions:

To consider sick people as people in their own right, regardless of the stage of the disease. This means respecting their rights and freedom, but also mobilizing their residual capacities and creating the conditions for them to express their wishes.

Investing in research in the human and social sciences, in the service of social innovation.

In the absence of any conceivable drug treatment in the short term, the field of SHS must be a prime area for innovation. Whether to test the effectiveness of non-drug therapies, anticipate changing needs or develop new support solutions and evaluate their impact, research in the is likely to significantly improve the daily lives of sick people and their families. This can generally be achieved within much shorter timeframes and for less investment than medical research.

Adopt a global and multidisciplinary approach to disease, taking into account all its dimensions: biomedical, medico-social, social, legal, economic, ethical, etc.

Medical research and medico-social support should not be set against each other but, on the contrary, complement each other. Similarly, it is essential to decompartmentalize and bring together those involved in social innovation – people with cognitive difficulties, family cares, and professionals in the field who are experimenting with new support solutions – and those in research to define a common strategy and take up the challenge of cognitive ageing. Draw inspiration from practices and experiences developed at national, regional and international level.

Since its creation, the Alzheimer Community Support of Burundi (ACSB) has been committed to working on the basis of the best scientific studies and the best local field initiatives carried out to improve the quality of life of people with Alzheimer’s disease and their caregivers. We envision to provide integrate support to victims of Alzheimer and other dementia, their direct families and relatives.

Values

By combining research in the human and social sciences and innovation in the field, the Alzheimer Community Support of Burundi contributes to a better understanding of the disease and encourages new solutions for supporting people with Alzheimer’s disease.

Our values : Integrity, openness, humility , ethic , expertise

Legal, financial and scientific independence.

Resources

Ethical requirement aimed at promoting the inalienable dignity of sick people, putting them at the centre of the support and care process and guaranteeing their rights and freedoms.

Expertise and rigor which underpin the legitimacy of the ACSB

Openness, which is demonstrated by taking into account all the dimensions of the disease (biomedical, economic, legal, social and societal) and the Association’s international outlook.

Governance

ACSB is administered by a Board of Directors which elects its President from among its members. It also designates an office which includes, in addition to the president, a vice-president, a treasurer and a secretary. The Board of Directors shall by its decisions regulate the affairs of the Association and may create one or more committees to assist it in all its actions. The President represents the association in all acts of civil life.

Accounts

The Alzheimer Community Support of Burundi ensures its independence and sustainability through the sound management of its resources.

Efficient use of resources

ACSB stands out for the sound management of its budget, which it relies mainly on the income from its assets. A financial committee made up of high-level volunteer advisors meets several times a year to monitor and optimize the composition of these assets. This rigorous work has been praised by the statutory auditors in charge of certifying each financial year of the association.

Furthermore, while the tax measures for 2019 have had an unfavorable impact on many similar structures in the context of appeals for public generosity, the association has managed to limit the consequences of these reforms on its operations.